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I Want the World to See My Son

"Do you really think you will change someone's mind about Down Syndrome just by posting pictures of your son?" asked a close relative.

To put the conversation into context, she wasn't bashing me or my son. She is one of the most compassionate people I know and loves Augie. She is also an uber-worrier. This comment was made as she was building her case for why putting pictures and information out on the Internet for all the world to see is potentially dangerous. And I get her point there. That, by posting so many personal things about my family, I am potentially putting us into a vulnerable position if a creeper is lurking around. I don't post our last name or physical location, but I'm sure that there are ways for people to find that out. So I get it.

BUT, I hope a far more likely scenario is that a mom or dad that just received a pre-natal or birth Down Syndrome diagnosis runs across my blog and that it DOES make a difference, even if just a little bit. That some of the fear or uncertainty they are feeling can be replaced with hope and inspiration. That they can see pictures of my son, and see what I see - a beautiful baby boy with so much potential. That they can balance the scary statistics and information received from a genetics counselor or doctor with stories of every day life filled with joy. Not to say it's all peaches and cream - this is real life that we are talking about. There are ups and downs.

But it is a good life.

So YES, I am going to keep posting pictures and stories of my son. And yes, I really think that we can change someone's mind.

Even if it is just one person, it's worth it.

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My almost 6 year old daughter took this picture of me, hence the unappealing camera angle.  But this is how she sees me, so even though it's not the most glamorous picture, it works.  This is me.

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